Riverlyn’s Heart of Hope

Hello all,  It's been a little while since we've sent an update. We've been in and out of the Emergency Department and hospital since we...

Good evening family & friends,  Big news - we came home late yesterday! The team feels she's stable enough even though half the valve is...

Hello all,  Phew... it's been a special week. Riverlyn received the tPA treatment at max dosage and duration. The first 24 hours freed up...

It’s been a wild couple of days for us. Riverlyn has recovered from the collapsed lung but our attention is now on her heart. Her valve...

Thank you everyone for hanging in there with us as we continue on the journey to see ALL the Healing that is available for Riverlyn come...

Hello hello, Now that we’ve had a little more time to get our ducks in a row it feels much easier to compose an update.  This week...

As of today we’ve been home a week and a half. In that time Riverlyn has seen her GI doctor, dietician, cardiologist, pediatrician,...

Today is day 100 and we’re coming home 🥹

Good morning everyone,  Tomorrow Riverlyn will be three months old! It's hard to believe that so much time has passed. On the other hand,...

Hi all,  Surgery went well today. They attempted a repair but her anatomy wasnt sufficient for that to be successful so she received a...

The second opinion we were seeking from Boston's valve team echoed the course of treatment she's currently on. Thus, surgery is a go -...

Last week God encouraged me to "not be afraid of surgery." It was an interesting thing to hear and I wondered if it wasn't...

Good morning! It's been a busy week since the last update. This is the shortlist we were working off of for our road to home - there has...

Good morning all,  This week they decided not to go forward with surgery at this time. We wish it was due to heart improvement but the...

A few more updates on the heels of the email last night:  RIVERLYN - She’ll be getting the feeding tube back in so we are paying her...

Good evening everyone,  We were waiting on some tests to send this update. For the past four days Riverlyn has been without her feeding...

Hiya,  It's been almost a week since we sent an update and what a week it's been. In some ways it feels like we took a hundred steps...

Good evening loved ones,  Riverlyn had some of her strongest moments yet today! They are so so so welcome on the heels of two very...

Hello again,  The past few days we’ve been making great strides forward. Riverlyn successfully weaned off the two meds keeping her in the...

Good evening all,  Yesterday afternoon Riverlyn was extubated 🙌🏼 It was an intense procedure but she’s doing well. She’s getting nasal...