Riverlyn’s Heart of Hope

A heart is something we all have in common. Tangibly and intangibly it represents life. In that, it happens to be World Heart Day - a day...

Soooooo today Riverlyn is off sternal precautions 🙌🏼 It’s a huge deal because it means she is six weeks post op. Overall she’s been...

Two days later I’m finding a few minutes to share that we flew home Tuesday morning! The flight was uneventful thankfully! Since we’ve...

On Thursday evening Rivy’s numbers were acting a little funny. I thought it was a bad probe so I did a manual count and her heart rate...

Wowza! Rivy has been discharged from Boston Children’s Hospital just shy of a week after her third open heart surgery. Her recovery has...

Riverlyn has come through some of the toughest parts of her initial recovery in the last 72 hours! She’s overcome a fever, slight...

Yesterday was a capital “L” long day! Riverlyn got called for pre op just after 2pm and we said, “Goodbye for now,” around 2:30pm. We got...

Surgery is scheduled for tomorrow afternoon. We are thankful for the promptness and yet the flurry of emotions is upon us acutely. The CT...

Matthew and Nathan arrived yesterday - just in time for record heat! They got unloaded and parked which was no small task. Matthew was a...

Goodness what a journey. Yesterday we got picked up by Med-Center Air. It was an emotional moment leaving the floor but we both got lots...

Wow! Today is the day… we are waiting on the exact time for transport but we’re in motion to be traveling today. Once we arrive they’ll...

It's been a couple weeks now since we got admitted. It took Rivy quite a few days to get back to her baseline but IV diuretics have...

We found ourselves admitted to Levine Children’s Hospital today. Rivy hasn’t been tolerating her heart failure as gracefully as she has...

Family, Friends, & Team Rivy,  We had a consultation with Boston Children's Hospital this morning and, per our last note, it looks like...

Family, friends, & care team,  It is with deep gratitude and refreshed sobriety that we share an update about Riverlyn. This month she...

What a year… the most traumatic and trying of our lives… and yet, our beautiful girl is home, happy, and hopeful!  It’s fitting that...

Friends & Family, Riverlyn has been home for a few months now and in so many ways it has felt like a dream. The past couple weeks have...

Hello family and friends!  An email update is long overdue - thank you for your patience as we've tried our best to get settled at home....

Good morning family & friends,  Riverlyn has had quite a journey post-op. She's had bouts with fevers and involvement with the Infectious...

What a day! Early this morning Riverlyn's surgeon came to speak with us about her surgical options. We had been seeking a second opinion...